India

  • A patient at Premananda Hospital with her mother

Bankura Snehalaya

This residential home at Bankura Hospital provides support for 35 elderly people who are severely disabled by leprosy who have no other way of caring for themselves. The social needs of the residents are addressed through group and individual counselling sessions and relatives are encouraged to visit in order to restore broken relationships. The residents find dignity and joy in tending their garden, which provides food for the kitchen. Residents are helped to obtain their rights as Indian citizens, for example in 2016 many of them voted in state elections for the first time in their lives. 

Bankura Vocational Training Centre

This project provides vocational training to approximately 150 young people affected by leprosy or disability. This will enable them to access employment, often in large firms in Kolkata, or self-employment, becoming financially independent and integrated into mainstream society. The centre provides comprehensive technical and non-technical training. A strong alumni network allows graduates to feedback on course content and monitor employment practices in the firms in which they work, promoting fair labour.

Rainbow Children’s Home, Andhra Pradesh

The Rainbow Children's Home, run by TLMEW's partner Brighter Future Development Trust, provides care for children both male and female from leprosy communities in the region or found living rough and begging on railway platforms. At the home, the children are provided with food, clothing, education and healthcare. Awareness and education campaigns are held in local villages and schools to address discrimination against children affected by leprosy. Children are progressing in their education with many now attending secondary school and  studying at college, with the remainder all in primary school. Additional activities such as extra classes, including computing, working on the small farm, games, dancing and sports all add to their wider development and their sense of community. Child participation in decision-making at the home is encouraged. 

Leprosy colony development in Andhra Pradesh

This project supported five leprosy communities in Andhra Pradesh. It paid for a part-time doctor and medical assistant who between them, treated 160 patients per month and 18 patients on a daily basis for ulcer care. In 2015, the project trained three cobblers to make protective sandals and in 2016, 405 pairs were given to residents of the five communities. The project supports residents with education about their health, self-care and an understanding about how to access their rights, building better relationships between the colonies and local government.  Additionally it provided food parcels to the most vulnerable, disabled and elderly leprosy affected people, helping them to stay in their homes rather than needing residential care.  From 2019, in a new phase of the project, activities will scaled up to carry on work from the CREATE project to ensure sustainability, including developing the capacity of SLAP, the Leprosy People's Organisation in Andhra Pradesh.

Brighter Future Housing

This project, in partnership with Brighter Future Devlopment Trust is linked with the Government which provides match funding in the form of a grant to build sustainable houses for people affected by leprosy.

Champa Vocational Training Centre

Vocational training has been provided to 120 young people affected by leprosy or disability which will enable them to become financially independent and integrated into mainstream society. The centre provides comprehensive technical and non-technical training in subjects such as tailoring, welding, mechanics and IT as well as courses in bicycle repair and agriculture. In addition, all students work on Champa Hospital's organic farm to develop their agricultural skills, which also helps to reduce the running costs of the centre.

Chandkhuri Hospital

India's highest leprosy prevalence rate is found in Chhattisgarh, where Chandkhuri Hospital is situated. It is an area where more than a third of the population live in complete poverty. The hospital provides critical high quality treatment for leprosy complications and reconstructive surgery. Each year the hospital gives treatment to over 26,000 patients, of whom almost 2,000 are affected by leprosy. Their work includes diagnosis and treatment, surgical procedures and complementary services include health education, disability care, physiotherapy, and community based vocational training.  Additional funding in 2016 paid for a new digital x-ray machine and a cell-counter for the laboratory, significantly improving the speed and accuracy of various diagnoses.

Customised protective footwear

This project will expand and sustain the innovative production of customised protective footwear for people affected by leprosy, diabetes and other foot-health problems from all over India. It has been started and successfully trialled with funding from a Google Impact Grant. It uses new 3D printing and milling technology to produce bespoke insoles that can be used with mainstream footwear.

CREATE

This three year project funded by the European Union and delivered in partnership with Brighter Futures Development Trust is working in four Indian states to transform lives through advocacy, training and employment. People affected by leprosy and disabilities have been enrolled into community advocacy groups (CSOs) through which many are accessing rights and entitlements for the first time; including ID cards, disability pensions, travel passes, subsidised food rations, disability aids and other Government schemes.  Through vocational training centres and other training projects, people have received employment training and business skills. Additionally, this project partnered with Leeds University’s Institute of Health Sciences (LIHS) to gather data on leprosy stigma and to produce and field test a 'toolkit' on understanding and challenging leprosy related stigma.

Karuna mobile health clinic - Stepping Stones

This project involves a mobile health clinic working in the slums of Mumbai, treating people affected by leprosy and other marginalised groups (including people living with HIV and sex workers).  A new approach means that the clinic will transition from providing welfare to empowerment; teaching people self-care and how to dress their own wounds. It will also undertake leprosy awareness campaigns. More than 1,500 people affected by leprosy will benefit from the project. As communities become more self-sufficient in self-care, the clinic will move to other communities. 

Media centre

The goal of the Diana Princess of Wales Health Education and Media Centre is to promote inclusive development of people affected by leprosy and other disabilities in India. It supports people affected by leprosy and people with disabilities to access their right to education, employment and health and has influenced changes to a number of government policies. The media centre aims to become a resource hub for advocacy at the national level to influence policy and practices and also through using communication methods to influence knowledge and attitudes on leprosy and disability. The project has actively challenged discriminatory legislation in India and in the development of materials for the Government for national leprosy awareness campaigns.

Premananda Hospital

Premananda Hospital provides high quality medical treatment to over 4,000 people of whom around 250 are affected by leprosy. Other patients are from disadvantaged groups in a city which is one of the most densely populated in the world. The project ensures that people affected by leprosy in West Bengal are able to access treatment, with a particular focus on eye care. It also provides outreach clinics in Kolkata and to remote areas of West Bengal such as the Sunderbans.

Purulia Hospital

The Leprosy Mission has been working in Purulia since 1888 and the hospital now treats 30-40,000 patients every year from West Bengal and neighbouring states, of which at least 1,000 are people directly affected by leprosy.  Purulia Hospital provides a wide range of services including leprosy treatment and surgery to correct disabilities, ophthalmology, dermatology, orthopaedics and general surgical procedures. TLMEW has raised funds through World Leprosy Sunday in 2017 to build a new Outpatients department to meet additional demand and improve quality of patient care and is now working on its design and construction with Article 25 and The Leprosy Mission Trust India.

Research and training hub - Miraj/Naini

This project aims to develop professionals to comprehensively address the evolving needs of individuals and families affected by leprosy and other disabilities. It will establish a Training and Research Institute specialising in management of leprosy and its complications, management of other disabilities, with a focus on inner wellbeing for individuals and families and inclusive holistic community development. In addition, the centre will focus on research linked to these areas.

Replicable model towards zero leprosy

This project aims to work in two leprosy-endemic districts of India to develop a comprehensive approach to achieving zero leprosy, collecting evidence and developing a model that can replicated in other parts of India and beyond. Activities will include community awareness, training of grassroots health workers and volunteers, screening camps, mobile technology early detection tools, strengthening primary health services for diagnosis and referral, strengthening clinical services and complication management, self-care training, supporting inner wellbeing and providing opportunities for socio-economic support.

Stanley Browne Research Laboratory 

The Stanley Browne Research Laboratory in New Delhi has a significant publication record for molecular and drug resistance studies, including leprosy viability investigations. This will provide core funding to the lab to enable it to access other funding for research studies.

Integrated Tamil Nadu project

This projects will ensure the sustainability of the former CREATE and SOAR projects in Tamil Nadu, supporting the development of leprosy people's and disability organisations to advocate and implement production organisations that benefit their members.

Fundraising

The Leprosy Mission Trust India has been developing strong funding partnerships with individuals, corporates and churches within India, to help fund the projects within the country.  This funding is supporting their fundraising activities to help enable the organisation to be more financially sustainable.

Research

The Stanley Browne Research Laboratory in New Delhi has a significant publication record for molecular and drug resistance studies, including leprosy viability investigations. Other research includes looking at whether there are any non-human sources of leprosy infection.